Epilepsy Action​

The mission of Epilepsy Action​ is to make the world limitless for individuals with epilepsy. We hope to positively influence people’s lives and make them feel comfortable reaching out to us for help and information. Whether you or a friend, family member, someone you care for, or someone you work with has epilepsy, we are here to support you. In addition, we advocate for better health outcomes and a shift in perceptions of epilepsy while offering knowledge and assistance to medical professionals.

Our volunteers, many of whom have epilepsy themselves, report that helping has given them a sense of purpose, boosted their confidence, and given them the chance to learn new skills. We provide support to people in a variety of methods, such as a nationwide network of branches, certified volunteers, frequent regional conferences, and free phone and email helplines, in addition to advocating for better epilepsy services and increasing public awareness of the condition.

Seizure and Epilepsy Action​:

Seizure—In 1992, Epilepsy Action launched the European Journal of Epilepsy.

The biggest member-led epilepsy organization in the UK is called Epilepsy Action. The goal of Epilepsy Action is to enhance the quality of life for all individuals impacted by epilepsy.

Seizure’s emphasis on the clinical and psychosocial facets of epilepsy aligns with this objective. Furthermore, we are eager to submit articles on the natural history, epidemiology, differential diagnosis, basic research, and the study and effective treatment of seizure disorders. Papers on drug treatment, neurosurgery, and non-medical or behavioral treatments are of special interest to us.

Epilepsy affects people of all ages and backgrounds, and it affects more than 50 million people worldwide. As a result, we publish articles from both adults and children, covering epilepsy in both major epilepsy centers and outside of them.

The journal discusses strategies to lessen the stigma and handicap that epilepsy may bring, as well as the social and psychological toll that the disorder takes on those who have it, their families, and society at large. A plethora of useful and encouraging material is available from Epilepsy Action for patients and carers.

The role of genes in Epilepsy Action​

The development of some forms of epilepsy may be significantly influence with genetic alterations. Numerous varieties impact several family members, suggesting the presence of an inherited gene or genes. In some situations, gene variants known as “de novo” mutations can arise on their own and help people who have no family history of the condition develop epilepsy. In total, scientists think hundreds of genes may be involved.

Variations in genes that give instructions for ion channels—the “gates” that regulate the flow of ions (charged molecules) into and out of cells and aid in the regulation of neural signaling—have been connected to a number of epilepsy types (referred to as channelopathy-associated epilepsy). Variations in genes that regulate neuronal migration—the movement of neurons through the brain throughout development—and genes that aid in the breakdown of carbohydrates in the brain are other genetic alterations that may contribute to epilepsy.

Although they might not be the cause of epilepsy, other genetic alterations could have an impact on the condition in different ways. For instance, certain genes may influence a person’s vulnerability to seizures and response to anti-seizure drugs.

Conditions that can lead to Epilepsy Action​

“Co-occurring conditions” are a broad category of disorders that interfere with normal brain function and can lead to epilepsy. People may stop having seizures after these disorders are treating. The type of illness, the affected brain region, and the extent of brain damage before treatment. All determine whether or not the seizures stop.

Types of Epilepsy Action​

Absence epilepsy

Recurrent seizures that result in brief unconsciousness are a hallmark of absence epilepsy. Since the seizures typically start in infancy or adolescence and tend to run in families. It is possible that some hereditary factors play a role in them. During their seizures, some people may exhibit random movements. Like a jerking arm or fast blinking eyes, while others may not exhibit any symptoms at all, save for fleeting moments when they seem to be looking into space.

Frontal lobe epilepsy

A prevalent epilepsy syndrome, frontal lobe epilepsy is characterize with short focal seizures that can happen in clusters. The area of the brain that regulates movement may be impacted, and seizures may result in abnormal muscle weakness.

Temporal lobe epilepsy

The most prevalent epilepsy syndrome among those who experience focal seizures is temporal lobe epilepsy (TLE). Auras of sickness, emotions (such déjà vu or terror), or strange tastes or smells are frequently link to these seizures.

Neocortical epilepsy

Seizures that start in the cerebral cortex, or outer layer, are a hallmark of neocortical epilepsy. Both focal and generalized seizures are possible. Among the symptoms include strange feelings, visual hallucinations.

Resuming broader epilepsy services and redeploying medical personnel

Going forward, Epilepsy Action thinks there is a compelling argument for giving. Epilepsy services are a top priority for the redeployment of medical personnel and the restart of essential services when system capacity permits.
People with epilepsy have several known dangers. Necessitating a range of medical care to minimize early epilepsy-related mortality and prevent injury.
Risks of damage and early epilepsy-related mortality. Such as status epilepticus and sudden unexpected death in epilepsy (SUDEP), are connected with the condition.